July 1, 2026

Ugh...Life These Days In The Gigi Household

 Friends, things here have been HEAVY.  Hence, my recent lack of posts.  I don't want to drag you down with me.

We are quickly approaching the two year mark of my unemployment.  As you can imagine, this is a very heavy weight, particularly as I was the primary bread winner for the last few years.

But, I am beginning to think it is probably a good thing that I haven't found anything just yet.  As most of you know, my husband is significantly older than me (12 years) and is beginning to have a few health issues (nothing too serious that we know about yet anyway). And it has become quite apparent to me that he needs me to advocate for him.

He has high blood pressure (genetics and anxiety are the root cause) and has been on Amlodipene for years.  Well, it caused his legs to swell a ridiculous amount and it was getting worse.  I've told him to talk to his doctor about it.  And every time he did, the doctor just said that was a side effect.  So when he went to see his doctor this last time, I went with him.  I looked that doctor in the eye, while pointing to my husband's legs and said, "This needs to be resolved now.  Not only can he barely get his shoes on, he is uncomfortable and has a hard time walking." (there are other issues from the swelling that I won't get into here).  Needless to say, we came away from that appointment with a couple of referrals - including one for a sleep study because he's not sleeping well, which I am attributing to possible fluid around his lungs (if he's got that much fluid in his legs, you can just assume it's everywhere at this point) and apnea - and he is now officially off Amlodipene and on something else.  To be honest, this should have NEVER gone on this long.  And the fact that he never pushed back with the doctor in the first place irritates me.

The doctor we saw yesterday, put him on a strong diuretic and the swelling is slowly coming down.  And the doctor we saw today told me that it will take some time since he was on the medication for so long.

I have been discussing these issues with my friend two doors down (she's a nurse) throughout all of this and she looked at me ad said, "You know you are going to have to go with him to every doctor's appointment from here on out."  And I agreed.  Because it has become increasingly apparent that not only will he not advocate for himself, he won't ask questions.

How do I know this?  Because back in December he had to have a bit of skin cancer removed from his leg.  He was told to put this cream on it and keep it covered because they didn't want it to scab over.  Did this man ask how long he should keep it covered?  No, friends, he did not.  And then unilaterally decided after two weeks that it didn't need to be covered any more.  When he went back for the follow up visit in January he was told it should have been covered this whole time and to keep it covered.  Again, did he ask how long he should keep it covered?  No, he did not.  And that's when I put it together and realized that I need to be in the exam rooms with him to advocate, listen to what he might miss and ask questions.

 So that is where we are at this point in time.  I still don't have a job, and apparently don't need one as I am now his full time healthcare advocate - which for the next month or so looks like a full time job in and of itself.

Me, my friend, and the doctors are all of the mind that if we can get the swelling down a lot of the other issues will take care of themselves.

So all that to say, advocate for yourselves and pay attention to what your spouse is doing regarding their health; because they may very well need you to advocate for them.  And, if you are on Amlodipene, keep an eye on your ankles and if you notice ANY swelling get to the doctor immediately to discuss alternatives. 

18 comments:

  1. Oh Gigi. I cannot believe it's been two years. How incredibly frustrating!

    As someone who has a LOT of trouble self-advocating and asking questions (it's like my brain leaves the premises whenever I set foot in a doctor's office), my cheeks burned a little reading this. Of course, I don't know your husband's motivation for the way he behaves, but for me, there's something about the anxiety of being at the doctor combined with the lifelong compulsion to respect authority figures that renders me incapable of behaving like a reasonable adult. I am aware of my shortcomings, and my husband chides me a little when I don't know the answers to things, or haven't asked specific questions, and in general I feel pretty dumb about the whole thing. Your husband is super lucky to have you there with him, and it sounds like it's already paying off! Good for you for pushing for solutions instead of accepting the "it's a side effect" line. I'm so happy for you both that his symptoms are already improving.

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  2. Yes Suzanne, TWO whole years. Extremely frustrating.

    I get it, advocating for myself? That's asking a lot from me. Advocating for him? I am all about it. I just never realized that I would have to do it. Let's hope he does the same for me when I need it.

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  3. Oh, Gigi.
    What a hard time for you and your loved ones. Sometimes these seasons of life seem endless in the worst possible way.
    I'm so glad you're able to advocate for your husband but I'm sure that feels like a big burden as well.
    Hoping for some clarity and relief in the near future <3

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    1. Thank you, Elisabeth. Yes, everything feels like a burden right now. But I'm also feeling very fortunate that I have the space and time to be there to help him through this trying time.

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  4. I'm so sorry, my friend. It sounds like you're feeling the heaviness of everything you're going through, and I understand that on a very deep level.

    I can definitely relate on the husband front too. I've found it really helps to have someone come along to doctor's appointments. Interestingly, I've noticed it works both ways. When my husband has come with me, my doctor (who also happens to be his doctor) seems much more chatty and informative. I actually looked it up once, and apparently it's a real phenomenon. I think it's good for all of us to have an advocate with us when we can.

    Sending you so much love. And keep writing—you aren't dragging us down. Life is just life-ing sometimes, and we're here for you. 😘💜

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    1. Thank you, Kari. Life is just life-ing and we are just trying to muddle through it all. We'll get to the next chapter somehow though.

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  5. I don't know how you get any doctor to listen to you. I have tried so many times to have doctors take what I say seriously and they just don't. One time my husband was with me (just because of scheduling and we only had one car at the time) and the doctor tried to blow me off about something and my husband pushed back and suddenly they were taking it seriously. I just...I am defeated by health care. Seriously defeated. My dominant thumb is incredibly messed up (they told me it was sprained, when I went back they FINALLY did xrays and it was indeed broken, but PT wouldn't see me, blah, blah, blah, by the end of it, my thumb is permanently disfigured) and I have chronic pain that no doctor will take seriously.

    Bless you for helping your husband. May he never need you more than right now.

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    1. I'm so sorry you were treated so dismissively! That's exactly why I was so fired up and firm when I went with him. My husband had brought this issue up, multiple times over the years and was just brushed off. I wasn't not having it that day and I think that doctor realized it.

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  6. Oh Gigi. I am so sorry things have been so heavy. First of all, two years? I can't believe it's been so long (well, yes I can, time flies etc). I did know your husband was older, but I didn't know the gap. My husband is ten years older than I am and as we age I find myself being a bit concerned about that. I'm glad he has you to advocate for him, the whole thing sounds so exhausting. Rob has been on BP medication for...twelve years now? He had a swelling issue back in 2018 and it turned out to be sarcoidosis. That was a very alarming time, I will tell you. All of which is to say that I'm happy that things are becoming resolved.

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    1. Yep, two years - I can't believe it either. It's going to take some time to get these issues resolved, but we are on the right path now, I think.

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  7. Tut! Not to be worrying! 😊 you don't drag us down but we walk with your to help lighten the load.

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  8. I'm so sorry that all this is burdening you. Stress is a terrible thing and it can cause so many actual physical problems, yet it's almost impossible at times to manage. I hope you are also doing things to care deeply for yourself as you care/advocate for your husband.

    Like Engie, I'm so tired of America's broken healthcare systems. Doctors are beleaguered, too, I know. Thank goodness you were (and will be) there to make sure your husband is on the road to real wellness.

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    1. Thank you, Nance. I'm trying to care for myself and not let the stress get to me. I'm so fed up with the healthcare system in this country. Although, I will say that his doctors (other than that first one who dismissed the swelling for years) have been very empathetic and are pushing his appointments and tests through quickly to help us get everything under control again.

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  9. I am so very sorry that your husband has been having so many health issues. Also, it didn't seem like it had been two years since you were unemployed. (I'm sure you feel differently about this!) My friend, sending you so much love and (cyber) support! XOXO

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  10. Thank you, Suz, for the love and support. It means more to me than you know.

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  11. A good doctor, one who will listen to you, is SO IMPORTANT. I have been lucky that most of my doctors have been that way. Also lucky that my husband is very good at speaking up for himself. I remember when my mom was in her final illness, going to the doctor with her and being amazed at how quiet and submissive she was. That was NOT her personality generally, but I think she wanted him to like her. Like, if the doctors and nurses like me, I will get better care. Well sure, you don’t want them to hate you or anything, but it might be a good idea when they ask you a specific question that you answer it honestly. My grandma was the same way. FRUSTRATING. I’m glad you are able to be there for your husband when he needs you.

    UGH, 2 years without work? How scary and frustrating. I’m so sorry. I worry about that…I’m 60 now, and my industry (tech) is very youth focused. If I were let go, could I find another job? I can’t afford health insurance until I’m old enough for Medicare. UGH.

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    1. Thank you Jules. It just really ticks me off that my husband mentioned it SEVERAL times and was blown off each time. It had to take an angry, upset wife to get something done about it.

      Somehow your comment ended up in Spam *sigh* As a 58 year old, I can tell you this job market is definitely not in our favor right now.

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